A new program for children with rare diseases

Uzbekistan President Shavkat Mirziyoyev has adopted a special program to provide social and medical support for children suffering from rare and hereditary diseases. This was reported by Zamin.uz.

This program covers the period from 2026 to 2030 and envisages a number of important changes for citizens affected by rare diseases. According to the program, the list of rare diseases eligible for state-funded treatment will be expanded.

Now, the number of such diseases will increase from five to ten. Additionally, the provision rate of necessary medicines for children will be raised from 95 percent to 99 percent.

This is especially significant for children suffering from severe illnesses. Starting from the beginning of 2024, citizens aged 18 to 21 will also have the opportunity to undergo free medical monitoring for rare diseases.

Rare or orphan diseases are usually uncommon, hereditary in nature, and require complex treatment. Examples include cystic fibrosis, hemophilia, Gaucher disease, phenylketonuria, and spinal muscular atrophy.

This decision is an important step aimed at further developing the healthcare system in the country and strengthening social protection for the population. Source: One.uz.